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Clinical Rehabilitation
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Stroke patients' views on stroke outcomes: death versus disability

H C Hanger

B Fogarty

T J Wilkinson

R Sainsbury

Department of Health Care of the Elderly, The Princess Margaret Hospital, Christchurch, New Zealand

Aims: To determine how elderly stroke patients perceive different stroke outcomes, including death, relative to each other and how these views compare with those of age/sex-matched controls.

Participants and setting: Twenty-eight elderly patients discharged from hospital with an acute stroke causing hemiplegia. Twenty-eight age/sexmatched control patients from the same hospital who had never had a stroke or transient ischaemic attack.

Methods: Patients and controls were asked to rank 11 clinical scenarios of potential stroke outcomes, from the most to the least desirable outcome.

Results: There was a striking bimodal distribution for sudden painless death in both groups. Painless death was preferred to even a minor stroke disability in over one-third of elderly individuals, whilst 20% would prefer severe disability rather than painless death. Sixty-nine per cent of stroke patients and 82% of controls ranked death as preferable to severe disability. Stroke patients may be more tolerant of disability (compared to death) than their controls (39% patients and 61% controls preferred death to any disability, p = 0.11).

Conclusions: Our results suggest that many elderly individuals would rather die than be alive and severely disabled. This may have important implications for acute stroke treatments such as thrombolysis.

Clinical Rehabilitation, Vol. 14, No. 4, 417-424 (2000)
DOI: 10.1191/0269215500cr330oa


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