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Activities and participation of 9- to 13-year-old children with cerebral palsy

Department of Rehabilitation Medicine and Institute for Research in Extramural Medicine (EMGO Institute), VU University Medical Center, Amsterdam, The Netherlands, reva{at}vumc.nl

Annet J Dallmeijer

Department of Rehabilitation Medicine and Institute for Research in Extramural Medicine (EMGO Institute), VU University Medical Center, Amsterdam, The Netherlands

Carlo Schuengel

Department of Orthopedagogy, Faculty of Psychology and Pedagogy, Vrije Universiteit, Amsterdam, The Netherlands

Dirk L Knol

Institute for Research in Extramural Medicine (EMGO Institute) and Department of Clinical Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, The Netherlands

Gustaaf J Lankhorst

Department of Rehabilitation Medicine and Institute for Research in Extramural Medicine (EMGO Institute), VU University Medical Center, Amsterdam, The Netherlands

Jules G Becher

Department of Rehabilitation Medicine and Institute for Research in Extramural Medicine (EMGO Institute), VU University Medical Center, Amsterdam, The Netherlands

Objective: To describe the activities and participation of children with cerebral palsy and to examine the relationship with personal factors and disease characteristics.

Design: Cross-sectional study.

Setting: Department of Rehabilitation Medicine of a University Medical Center in The Netherlands.

Subjects: One hundred and ten children: 70 boys, 40 girls, mean (SD) age 11 years and 3 months (20 months).

Outcome measures: Activities and participation, described in the domains of mobility, self-care, domestic life, social life and communication, measured with the Gross Motor Function Measure, the Pediatric Evaluation of Disability Inventory and the Vineland Adaptive Behavior Scales.

Results: Multiple linear regression models showed that the Gross Motor Function Classification System (GMFCS) was strongly associated with mobility (explained variance 87-92%), self-care and domestic life. Apart from the GMFCS, cognitive impairment and limb distribution were less important but also significantly associated with self-care and domestic life (explained variance 65-81%). Cognitive impairment and epilepsy were the most important factors associated with social life and communication (explained variance 54-75%).

Conclusion: Activities and participation can, to a large extent, be explained by only a few associated factors.

Clinical Rehabilitation, Vol. 20, No. 11, 937-948 (2006)
DOI: 10.1177/0269215506069673


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