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Clinical Rehabilitation
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The lived body — experiences from adults with cerebral palsy

Karin Sandström

Department of Health and Society/Physiotherapy, Faculty of Health Sciences, Linköping University, Sweden, karsa{at}ihs.liu.se

Objective : To get a deeper understanding into how adults with cerebral palsy experience living with a disability and how they manage daily life.

Design : Interviews with open-ended questions were carried out. They were analysed by one person according to the Empirical Phenomenological Psychological method (EPP).

Setting and subjects : Twenty-two community-living adults (35—68 years) with cerebral palsy from five counties in Sweden participated. All had mobility problems and all had cognitive abilities making it possible to carry on a conversation.

Results : The varied experiences resulted in themes including (1) perceptions of living with a disability and (2) strategies used for managing the described perceptions. The perceptions were: a dys-appearing body, a not-appearing body, difference, being in-between, normality, restricted autonomy and autonomy. The strategies were: to fight one's way, to plan, to get used to it, to hide and to give one's all.

Conclusion : These interviews expressed heterogeneity in lived experiences showing the importance for professionals to meet people with cerebral palsy as individual subjects in relation to functional problems, self-image and autonomy together with seeing the consequences of different coping strategies.

Clinical Rehabilitation, Vol. 21, No. 5, 432-441 (2007)
DOI: 10.1177/0269215507073489
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